Missing You Already

26/10/2015

So one week into the lowering of neuropathy meds and I have to say my head feels clearer and my legs not so heavy, but the neuropathy is having a party at night time when I'm in bed.  Horrible foot cramps where I have to get out of bed 3-4 times at night to unlock distorted feet.  Hence I bought a foot spa today and seeing if that can loosen up the tootsies.  So one drug to go and see what happens then.

I came across this article during the week.  I have edited it to what is relevant for me right now...

"But when treatment is over? Well, life gets back to normal. Right?

Hmm … not so fast. It’s just not that easy. That’s what we forget to tell patients. Getting back to normal, getting on with life, is harder than everyone expects.

Picking up the pieces of your life before cancer – before chemotherapy or radiation wreaked havoc on the body and soul – takes much longer than one might expect. With the end of treatment comes an upwelling of fear of recurrence, fear that because active treatment has stopped, the cancer will be able to grow again. There is fear surrounding each scan and each blood draw. Anxiety swells before each oncology visit.

We might have forgotten to tell you that this is all normal. It’s an expected part of the recovery process. The fatigue from chemotherapy will get better over time. The hair will grow back. The fear of recurrence will subside with the passing of the months.

Another thing that we may have forgotten to tell you? You will be able to get on with your life again after cancer treatment. You’ll probably be a changed person after your experience, but you’ll get back to normal. If not the old normal then for sure a new one. Your life will resume, despite cancer, beyond cancer.

Just be sure to rally the support during this time. You still need it".

As was apt to do, the movie I saw last night "Missing You Already" got me thinking.  The hardest thing for me to watch was as Milly died, her husband was lying with her and his heartache was so raw.  I realised then that this is just what Wayne would be like and it broke my heart to know the pain he would be in.  He doesn't deserve to be a broken man.  Hopefully it's all a long way off.  Today I feel like it is

I have always been a people watcher and created Luke into one as well.  I was always making up stories about things I would see and say to Luke - look Luke, suspicious. Drug deal going down - and that was when he was a child!  He is an avid CI channel watcher so must have peeked his interest.

When I watch children now, I just see the gift they are.  One of our young mum's from work is just relishing motherhood and she is showing me again how to enjoy and make memories with loved ones.  I see her giving time to her son and that got me having some regrets.

I regret now that I had not spent more time and had more adventures with Luke when he was pre school age. I wish I had helped him explore more and look for adventures. I wish I had stopped doing the household chores, trying to keep myself busy, and spent time with my son showing him simple little joys.  I guess that's what grandparents do so well.  But thank goodness Wayne came along when Luke was five and introduced him to all sorts of craziness in 'Wayne's World'.

I know of another two ladies diagnosed this week...time to examine those breasts again, people.  Cancer does not discriminate.  Be aware of body changes and, if in doubt, take action.